What my daughter, with special needs, taught me about life and love

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What my daughter, with special needs, taught me about life and love.

When my daughter was 6 weeks old she was airlifted to a Newborn Intensive Care Unit to receive life-saving treatment. Over a three-week admission, I was told that my precious first-born baby was blind, developmentally delayed and reliant on medications to survive. My world became consumed by medical and therapeutic intervention and my role as Mama transitioned to carer, tube feeding specialist and ‘nappy-weigher’. Her dad battled with the devastating news that his baby girl was nothing like we’d imagined. Despite the hardships we faced through the first year of her life I was confident our relationship would withstand the turmoil.

But I was wrong.Continue Reading →